References

Brenner M, Larkin PJ, Hilliard C, Cawley D, Howlin F, Connolly M. Parents' perspectives of the transition to home when a child has complex technological health care needs. Int J Integr Care. 2015; 15:(3) https://doi.org/10.5334/ijic.1852

Carnevale FA, Alexander E, Davis M, Rennick J, Troini R. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics. 2006; 117:(1)e48-e60 https://doi.org/10.1542/peds.2005-0789

Cockett A. Technology dependence and children: a review of the evidence. Nurs Child Young People. 2012; 24:(1)32-35 https://doi.org/10.7748/ncyp.24.1.32.s23

Giambra BK, Sabourin T, Broome ME, Buelow J. The theory of shared communication: how parents of technology-dependent children communicate with nurses on the inpatient unit. J Pediatr Nurs. 2014; 29:(1)14-22 https://doi.org/10.1016/j.pedn.2013.03.004

Heaton J, Noyes J, Sloper P, Shah R. Families' experiences of caring for technology-dependent children: a temporal perspective. Health Soc Care Community. 2005; 13:(5)441-450 https://doi.org/10.1111/j.1365-2524.2005.00571.x

Kirk S, Glendinning C, Callery P. Parent or nurse? The experience of being the parent of a technology-dependent child. J Adv Nurs. 2005; 51:(5)456-64 https://doi.org/10.1111/j.1365-2648.2005.03522.x

Looman WS, Hullsiek R, Pryor L, Mathiason MA, Finkelstien SM. Health-related quality of life outcomes of a telehealth care coordination intervention for children with medical complexity: a randomized controlled trial. J Pediatr Health Care. 2018; 32:(1)63-75 https://doi.org/10.1016/j.pedhc.2017.07.007

Masten AS, Best KM, Garmezy N. Resilience and development: contributions from the study of children who overcome adversity. Development and Psychopathology. 1990; 2:(4)425-444 https://doi.org/10.1017/S0954579400005812

Mendes MA. Parents' descriptions of ideal home nursing care for their technology-dependent children. Pediatr Nurs. 2013; 39:(2)91-96

Mesman GR, Kuo DZ, Carroll JL, Ward WL. The impact of technology dependence on children and their families. J Pediatr Health Care. 2013; 27:(6)451-459 https://doi.org/10.1016/j.pedhc.2012.05.003

Okido ACC, Zago MMF, de Lima RAG. Care for technology dependent children and their relationship with the health care systems. Rev Lat Am Enfermagem. 2015; 23:(2)291-298 https://doi.org/10.1590/0104-1169.0258.2554

Sobotka SA, Lynch E, Quinn MT Unmet respite needs of children with medical technology dependence. Clin Pediatr (Phila). 2019; 58:(11-12)1175-1186 https://doi.org/10.1177/0009922819870251

Spratling R. Defining technology dependence in children and adolescents. West J Nurs Res. 2014; 37:(5)634-651 https://doi.org/10.1177/0193945914526002

Toly VB, Musil CM, Carl JC. A longitudinal study of families with technology-dependent children. Res Nurs Health. 2012; 35:(1)40-54 https://doi.org/10.1002/nur.21454

Toly VB, Blanchette JE, Sikorski S, Musil CM, Al-Hamed A. Maternal perspectives of well siblings' adjustment to family life with a technology-dependent child. J Fam Nurs. 2017; 23:(3)392-417 https://doi.org/10.1177/1074840717721705

US Congress, Office of Technology Assessment. Technology-dependent children: hospital v. home care—a technical memorandum. 1987. https://ota.fas.org/reports/8728.pdf (accessed 16 March 2020)

Varni JW, Limbers CA, Burwinkle TM. Impaired health related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales'. Health and Quality of Life Outcomes. 2007; 5 https://doi.org/10.1186/1477-7525-5-43

Wang KWK, Barnard A. Technology-dependent children and their families: a review. J Adv Nurs. 2004; 45:(1)36-46 https://doi.org/10.1046/j.1365-2648.2003.02858.x

Digital Healthcare

Care of children and young people who are dependent on technology

09 April 2020
At a Glance
02 April 2020
Volume 29 · Issue 7

This article discusses the care of children and young people living with technology dependence in the context of children's nursing practice.

Owing to increased medical knowledge and capabilities, more children and young people are living with chronic conditions or long-term complications of treatment. And many are dependent on technology (Wang and Barnard, 2004; Kirk et al, 2005; Toly et al, 2017). Although many children and young people may rely on one technology to sustain life, others have several technological devices to monitor their condition (Heaton et al, 2005). In the literature, children and young people who rely on technology for medical purposes are referred to by a myriad of different terms (Spratling, 2014).

The prevailing definition of technology dependence is that of the US Congress Office of Technology Assessment (1987), which defined technology dependence as having:

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