References

Ault MJ Inclusion of religion and spirituality in the special education literature. Journal of Special Education. 2010; 44:(3)176-189 https://doi.org/10.1177/0022466909336752

Aveyard H, Payne S, Preston N A post-graduate's guide to doing a literature review in health and social care, 2nd edn. : Open University Press; 2021

Baines S, Hatton C The impact of the birth of a child with intellectual disabilities on pre-existing parental Christian faith from the perspective of parents who have parented their child to adulthood. J Appl Res Intellect Disabil. 2015; 28:(6)524-535 https://doi.org/10.1111/jar.12147

Baker J Spiritual education in the special school setting for pupils with learning difficulties/disabilities. International Journal of Children's Spirituality. 2012; 17:(2)153-166 https://doi.org/10.1080/1364436X.2012.721751

Barber C Learning disabilities, spirituality and personal beliefs. British Journal of Healthcare Assistants. 2011; 5:(6)273-275 https://doi.org/10.12968/bjha.2011.5.6.273

Barlott T, Aplin T, Catchpole E Connectedness and ICT: opening the door to possibilities for people with intellectual disabilities. J Intellect Disabil. 2020; 24:(4)503-521 https://doi.org/10.1177/1744629519831566

Eating together: staff and care home residents sharing food and drink. 2019. http//peterbates.org.uk/wp-content/uploads/2019/12/Eating-together.pdf (accessed 3 June 2024)

Church Buildings Council. Church of England. Equal access to church buildings. 2021. https//tinyurl.com/ypp9w4tp (accessed 3 June 2024)

Cockell N, Mcsherry W Spiritual care in nursing: an overview of published international research. J Nurs Manag. 2012; 20:(8)958-969 https://doi.org/10.1111/j.1365-2834.2012.01450.x

Cookson A, Dickson JM The subjective experiences of people with an intellectual disability and diagnosis of schizophrenia who are detained in a medium secure unit. Journal of Applied Research in Intellectual Disabilities. 2010; 23:(4)379-389 https://doi.org/10.1111/j.1468-3148.2010.00554.x

Critical Appraisal Skills Programme. CASP checklist: 10 questions to help you make sense of a qualitative research. 2018. https//tinyurl.com/ycbk6v8k (accessed 3 June 2024)

Doody O, Noonan M Nursing research ethics, guidance and application in practice. Br J Nurs. 2016; 25:(14)803-807 https://doi.org/10.12968/bjon.2016.25.14.803

Draper P An integrative review of spiritual assessment: implications for nursing management. J Nurs Manag. 2012; 20:(8)970-980 https://doi.org/10.1111/jonm.12005

Durà-Vilà G, Dein S, Hodes M Children with intellectual disability: a gain not a loss: parental beliefs and family life. Clin Child Psychol Psychiatry. 2010; 15:(2)171-184 https://doi.org/10.1177/1359104509341009

Research with and by people with learning disabilities. 2016. https//tinyurl.com/y2tz46px (accessed 3 June 2024)

Garrett B Divinity in nursing: the complexities of adopting a spiritual basis for care. Nurs Philos. 2021; 22:(3) https://doi.org/10.1111/nup.12355

Hawthorne DM, Gordon SC The Invisibility of Spiritual Nursing Care in Clinical Practice. J Holist Nurs. 2020; 38:(1)147-155 https://doi.org/10.1177/0898010119889704

Hersov EK What does being Jewish mean to you? The spiritual needs of Jewish people with learning disabilities and their families. Journal of Religion, Disability & Health. 2007; 10:(3-4)183-205 https://doi.org/10.1300/J095v10n03_11

Hu Y, Jiao M, Li F Effectiveness of spiritual care training to enhance spiritual health and spiritual care competency among oncology nurses. BMC Palliat Care. 2019; 18:(1) https://doi.org/10.1186/s12904-019-0489-3

Keenan P, Mac Dermott C How nurses grieve for children who die in their care. Learning Disability Practice. 2016; 19:(3)16-22 https://doi.org/10.7748/ldp.19.3.16.s20

Lincoln YS, Guba EG Naturalistic inquiry.: SAGE Publications; 1985

Loh J Inquiry into issues of trustworthiness and quality in narrative studies: a perspective. The Qualitative Report. 2013; 18:(33)1-15 https://doi.org/10.46743/2160-3715/2013.1477

Mathews I Not like us? Wolfensberger's ‘major historic roles' reconsidered. Disability & Society. 2017; 32:(9)1351-1365 https://doi.org/10.1080/09687599.2017.1322494

The history of holistic medicine. 2018. https//www.castlecraig.co.uk/addiction-resources/history-holistic-medicine/ (accessed 3 June 2024)

Narayanasamy A, Gates B, Swinton J Spirituality and learning disabilities: a qualitative study. Br J Nurs. 2002; 11:(14)948-957 https://doi.org/10.12968/bjon.2002.11.14.10467

Nascimento LC, Alvarenga WA, Caldeira S Spiritual care: the nurses' experiences in the pediatric intensive care unit. Religions. 2016; 7:(3) https://doi.org/10.3390/rel7030027

Nursing and Midwifery Council. Learning disabilities nursing: field specific competencies. 2021. https//tinyurl.com/3m8rtvpw (accessed 3 June 2024)

Nursing and Midwifery Council. Disability and accessibility. 2022. https//tinyurl.com/vkvcyx54 (accessed 3 June 2024)

Page MJ, McKenzie JE, Bossuyt PM The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ. 2021; 372 https://doi.org/10.1136/bmj.n71

Pestana C Exploring the self-concept of adults with mild learning disabilities. British Journal of Learning Disabilities. 2015; 43:(1)16-23 https://doi.org/10.1111/bld.12081

Phelvin A Getting the message: intuition and reflexivity in professional interpretations of non-verbal behaviours in people with profound learning disabilities. British Journal of Learning Disabilities. 2013; 41:(1)31-37 https://doi.org/10.1111/j.1468-3156.2011.00719.x

Pike J Spirituality in nursing: a systematic review of the literature from 2006–10. Br J Nurs. 2011; 20:(12)743-749 https://doi.org/10.12968/bjon.2011.20.12.743

Why are we here: meeting the spiritual needs of people with learning disabilities. 2016. https//tinyurl.com/yc5s5yer (accessed 3 June 2024)

Raghavan R, Pawson N, Small N Family carers' perspectives on post-school transition of young people with intellectual disabilities with special reference to ethnicity. J Intellect Disabil Res. 2013; 57:(10)936-946 https://doi.org/10.1111/j.1365-2788.2012.01588.x

Ramezani M, Ahmadi F, Mohammadi E, Kazemnejad A Spiritual care in nursing: a concept analysis. Int Nurs Rev. 2014; 61:(2)211-219 https://doi.org/10.1111/inr.12099

Randell M, Cumella S People with an intellectual disability living in an intentional community. J Intellect Disabil Res. 2009; 53:(8)716-726 https://doi.org/10.1111/j.1365-2788.2009.01181.x

Reinert KG, Koenig HG Re-examining definitions of spirituality in nursing research. J Adv Nurs. 2013; 69:(12)2622-2634 https://doi.org/10.1111/jan.12152

Sango PN, Forrester-Jones R Spirituality and learning disability: a review of UK Government guidance. Tizard Learning Disability Review. 2014; 19:(4)170-177 https://doi.org/10.1108/TLDR-01-2014-0005

Sango PN, Forrester-Jones R Spiritual care for people with intellectual and developmental disability: an exploratory study. Journal of Intellectual & Developmental Disability. 2017; 44:(2)150-160 https://doi.org/10.3109/13668250.2017.1350834

Smiechowski J, Stelfox H, Sinclair S, Sinuff T, Grindrod-Millar K, Roze des Ordons A Vicarious spiritual distress in intensive care unit healthcare providers: a qualitative study. Intensive Crit Care Nurs. 2021; 63 https://doi.org/10.1016/j.iccn.2020.102982

Thomas J, Harden A Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008; 8:(1) https://doi.org/10.1186/1471-2288-8-45

Thornton L A brief history and overview of holistic nursing. Integr Med (Encinitas). 2019; 18:(4)32-33

Turner S, Hatton C, Shah R, Stansfield J, Rahim N Religious expression amongst adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities. 2004; 17:(3)161-171 https://doi.org/10.1111/j.1468-3148.2004.00192.x

Wolfensberger W The principle of normalization in human services.: G Allan Roeher Inst Kinsman; 1996

Wyatt L A history of nursing.: Amberley Publishing; 2019

Yanay-Ventura G ‘Nothing about us without us' in volunteerism too: volunteering among people with disabilities. Voluntas. 2019; 30:(1)147-163 https://doi.org/10.1007/s11266-018-0026-7

How nurses can apply spiritual care to improve the daily lives of people with learning disabilities and their families

20 June 2024
Volume 33 · Issue 12

Abstract

Background:

Most UK nursing research into spirituality overlooks its daily application in certain specialties, notably learning disability nursing.

Aims:

Tz explore spirituality over the lifespans of people with learning disabilities and how spiritual care affects their quality of life. To provide practical examples for nurses on how to apply spiritual care in their daily practice.

Methods:

A literature review conducted between January 2002 and July 2022) following recommendations from the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA). Thomas and Harden's (2008) approach to thematic synthesis was used to structure 10 full-text articles into three key themes.

Findings:

The three key themes were: the role of the nurse, the impacts on the individual, and family/carer perspectives.

Conclusion:

The nursing role in using spiritual care encompasses care planning an individual's spiritual activities, facilitating time alone, nurturing values such as self-acceptance, building therapeutic relationships, and advocating for progression in existing social structures and legislation.

In medieval Europe, including England and Wales, the role of the nurse was characterised as that of a member of a religious order. It was not until the Crimean War, when Florence Nightingale rose to prominence, that nursing became recognised as a respectable profession for women (Wyatt, 2019). In the 20th century, the nursing profession began to subscribe to post-Enlightenment ideologies. It was considered that religious paradigms were incompatible with health care, and thoughts of the spirit or soul were to be avoided due to their non-empirical nature (Garrett, 2021). Despite this absence of spirituality in nursing and healthcare research, holistic care has grown in influence through the decades. A holistic approach to nursing entails care that recognises the wholeness of a person, addressing their physical, psychological, social and spiritual needs (Thornton, 2019; McCann, 2018).

Register now to continue reading

Thank you for visiting British Journal of Nursing and reading some of our peer-reviewed resources for nurses. To read more, please register today. You’ll enjoy the following great benefits:

What's included

  • Limited access to clinical or professional articles

  • Unlimited access to the latest news, blogs and video content