References
Quality of life of family caregivers of patients with a stoma: a cross-sectional study from Iran
Abstract
Aim:
The family plays a key role in supporting and caring for patients who have a gastrointestinal stoma because of cancer. This study investigated the quality of life of family members caring for such patients.
Methods:
A descriptive study was conducted in 2020 in Iran. The study sample consisted of 250 family members caring for cancer patients with an intestinal stoma. The Caregiver Quality of Life Index–Cancer scale was used to measure quality of life. This scale has 35 questions, which are categorised into four subscales: mental/emotional burden; lifestyle disruption; positive adaptation; and financial concerns. The highest possible total score is 140 (35 in each subscale), and a high score indicates a poor quality of life.
Results:
A total of 250 carers took part in the study. Of these, 143 (57.2%) were men and the average age was 35.1 years. Mean scores of mental/emotional burden, lifestyle disruption, positive adaptation, and financial concerns were 28.4±41, 17.3±3.2, 19.8±28, and 8.6±1.2 respectively. No significant relationship was found between participants' quality of life and demographic variables.
Conclusion:
Carers' quality of life is relatively poor. Carers' quality of life need to be improved and support programmes, devised and delivered by nurses, could have a role in this.
The family plays a key role in supporting and caring for patients with a gastrointestinal stoma (Burch, 2014; Abdullah et al, 2019). In many cases, both patients with a stoma and their families need attention and care (Cetolin et al, 2013). Where patients with a stoma require long-term care and are unable to perform it themselves, family members, as primary carers, are often responsible for providing this at home (Oliveira et al, 2014). This can put a heavy burden on these relatives. Family caregivers in these cases usually have to devote a lot of time to caring for the patient, which can affect their own health, employment, social activities and rest (Oliveira et al, 2014). It also affects the physical, mental and social aspects of family caregivers' circumstances, which can reduce their quality of life (Çelik et al, 2017). Caring for people with a stoma can be a major challenge because of their specific needs, such as that for stoma wound care (Reinhard et al, 2012).
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