Changes in routine for a person with dementia can be highly distressing. If a person moves during a hospital stay, whether from ward to ward or within one ward, it is likely staff will experience what feels like ‘challenging behaviour’ as the person tries to express anxiety and distress (NHS Education for Scotland (NHSES), 2011).
It may be that staff have made every effort to minimise moves and disruption, and the person has settled into a routine on the ward. However, routine will be shaken up again when it is time to discharge the person home or to a care home if their functional ability has changed since admission (NHSES, 2011). Regardless of the situation, discharge requires planning, preparation and a gentle approach. Nurses have a vital role in making people with dementia feel secure in hospital, ensuring they are recognised, listened to and communicated with throughout their stay. Facilitating a smooth transition is important for every patient; however, for a person with dementia, a little extra attention is required to minimise the stress that can arise from the combination of changes to the environment and the features of their condition.
Moves within and outside the ward should be kept to a minimum and, if required, should be undertaken with the interests of the person considered first. Every effort should be made for moves to take place during the day, late morning if possible (NHSES, 2011). Before any move, family and carers should be fully informed and given the opportunity to be involved and help if they wish (NHSES, 2011). The benefits of named nurses are widely acknowledged (Royal College of Nursing, 2015; Dudley and Walsall Mental Health Partnership NHS Trust, 2016). One named staff member should be responsible for ensuring everyone is kept informed and updated (NHSES, 2011).
Where a person is going to a new setting such as a care home, a named professional should be assigned and their details should be shared with the patient's family, carers and any professionals involved (NHSES, 2011). Older persons' mental health liaison services should be involved where available (NHSES, 2011). If the person does not have a carer, involving an independent advocate should be considered (NHSES, 2011).
Discharge planning
Planning the discharge should start on admission and involve the multidisciplinary team, the family and carer and, importantly, the person themselves (NHSES, 2011). The key aims of discharge planning are:
Thus, referrals to key services, such as physio- or occupational therapy, should be made as part of discharge planning, (NHSES, 2011).
When a person is being discharged, a comprehensive multidisciplinary assessment is essential (NHSES, 2011). Local discharge checklists will vary, but issues to consider include:
Conclusion
After a hospital stay, a person's functional ability and care needs may change. Every effort should be made to return the person to their home, rather than an alternative care setting, and technologies are available to support this. These include personal wearable GPS tracking devices, such as pendants, bracelets, watches and even insoles (Mendes, 2015).
The highest quality of care possible should be facilitated, and the ability of the carer to care for the person in their home should be supported for as long as is practical, safe and fulfilling for both patient and carer. Support must be given and referrals made to help the person readjust to living as normal a life as possible at home or the new care setting after discharge.